The TS Alliance is pleased to offer online audio files from the majority of sessions recorded during the National TSC Conference. The audio files are organized according to the following educational tracks:
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Keynote Addresses
Opening Keynote Address: Update on NIH Research and a Look into the Future PLUS Managing TSC: Testing and Follow-Up Story Landis, PhD, Director, National Institute of Neurological Disorders and Stroke, National Institutes of HealthManaging TSC Part 1: Kevin Ess, MD, PhD; Stephen Ashwal, MD; Elizabeth Thiele, MD, PhDSaturday Keynote Address: TSC Advocacy--Impacting Resources for TSC Research Mark Vieth, Cavarocchi-Ruscio-Dennis Associates, LLCClosing Keynote Address: Update on TSC Research--Looking Foward to Meaningful Treaments and a CureVicky Whittemore, PhD, Vice President and Director of Science, TS Alliance
Opening Keynote Address: Update on NIH Research and a Look into the Future PLUS Managing TSC: Testing and Follow-Up Story Landis, PhD, Director, National Institute of Neurological Disorders and Stroke, National Institutes of HealthManaging TSC Part 1: Kevin Ess, MD, PhD; Stephen Ashwal, MD; Elizabeth Thiele, MD, PhD
Saturday Keynote Address: TSC Advocacy--Impacting Resources for TSC Research Mark Vieth, Cavarocchi-Ruscio-Dennis Associates, LLC
Closing Keynote Address: Update on TSC Research--Looking Foward to Meaningful Treaments and a CureVicky Whittemore, PhD, Vice President and Director of Science, TS Alliance
Track A Sessions
Managing TSC: Testing and Follow-Up Screening Part 2 PLUS Genetics Made SimpleManaging TSC Part 2: Kevin Ess, MD, PhD; Stephen Ashwal, MD; Elizabeth Thiele, MD, PhDGenetics Made Simple: David Kwiatkowski, MD, PhD; Janine Lewis, CGC; Hope Northrup, MDBeyond Anticonvulsants Michael Frost, MD; David N. Franz, MDRenal Manifestations and Treatment Options Lori Batchelor, RN; John Bissler, MD; John Hulbert, MD; Chris Kingswood, MDSexual Issues of Development Lori Batchelor, RN; Petrus de Vries, MD, PhD; David W. Dunn, MDEpilepsy Panel: Seizure Control Steven Sparagana, MD; Candida Brown, MD; Gregory Holmes, MD; Raman Sankar, MD, PhDEpilepsy SurgeryW. Donald Shields, MD; Orrin Devinsky, MD; Howard Weiner, MD; Mustafa Sahin, MD, PhD; Peter Black, MD; Michael Frost, MD; Mary E. Dunn, MDSkin Manifestations and Treatment Options John Hulbert, MD; Mark Mausner, MD; Joseph Yohn, MDOverview of Seizures: Types and Treatments Steven Sparagana, MD; Michael Frost, MD; Raman Sankar, MD, PhD
Managing TSC: Testing and Follow-Up Screening Part 2 PLUS Genetics Made SimpleManaging TSC Part 2: Kevin Ess, MD, PhD; Stephen Ashwal, MD; Elizabeth Thiele, MD, PhDGenetics Made Simple: David Kwiatkowski, MD, PhD; Janine Lewis, CGC; Hope Northrup, MD
Beyond Anticonvulsants Michael Frost, MD; David N. Franz, MD
Renal Manifestations and Treatment Options Lori Batchelor, RN; John Bissler, MD; John Hulbert, MD; Chris Kingswood, MD
Sexual Issues of Development Lori Batchelor, RN; Petrus de Vries, MD, PhD; David W. Dunn, MD
Epilepsy Panel: Seizure Control Steven Sparagana, MD; Candida Brown, MD; Gregory Holmes, MD; Raman Sankar, MD, PhD
Epilepsy SurgeryW. Donald Shields, MD; Orrin Devinsky, MD; Howard Weiner, MD; Mustafa Sahin, MD, PhD; Peter Black, MD; Michael Frost, MD; Mary E. Dunn, MD
Skin Manifestations and Treatment Options John Hulbert, MD; Mark Mausner, MD; Joseph Yohn, MD
Overview of Seizures: Types and Treatments Steven Sparagana, MD; Michael Frost, MD; Raman Sankar, MD, PhD
Track B Sessions
Infantile SpasmsCandida Brown, MD; Mustafa Sahin, MD, PhD; W. Donald Shields, MDMood and Behavioral Disorders in Children with TSC Renee Wachtel, MD; David Dunn, MDAutism Spectrum Disorders:Diagnosis and ManagementRenee Wachtel, MD; Petrus de Vries, MD, PhD; Christina Corsello, PhD; Elizabeth Reeve, MDOther Manifestations of TSC: Heart, SEGA, Bone, Spine, TeethVicky Whittemore, PhD; David N. Franz, MD; Fran DiMauro, MD; Greg Mlynarczyk, DDSTransition into Adulthood:Vocational Training, Alternative Living Situations, Getting into CollegeRobert and Kathryn Groves, MS; Frank Capone; Lora Brugnaro TSC through the Development Spectrum Michael H. Kohrman, MD; Ayla Humphrey, PhD; E. Steve Roach, MD How the Brain Processes and Suggested Interventions for Children with TSC Ayla Humphrey, PhDAdvocacy in the Education System Mary Brown; Dena Hook; Santo Pino, EDDCommunication Disorders in Children with TSCCandida Brown, MD; Renee Wachtel, MD
Infantile SpasmsCandida Brown, MD; Mustafa Sahin, MD, PhD; W. Donald Shields, MD
Mood and Behavioral Disorders in Children with TSC Renee Wachtel, MD; David Dunn, MD
Autism Spectrum Disorders:Diagnosis and ManagementRenee Wachtel, MD; Petrus de Vries, MD, PhD; Christina Corsello, PhD; Elizabeth Reeve, MD
Other Manifestations of TSC: Heart, SEGA, Bone, Spine, TeethVicky Whittemore, PhD; David N. Franz, MD; Fran DiMauro, MD; Greg Mlynarczyk, DDS
Transition into Adulthood:Vocational Training, Alternative Living Situations, Getting into CollegeRobert and Kathryn Groves, MS; Frank Capone; Lora Brugnaro
TSC through the Development Spectrum Michael H. Kohrman, MD; Ayla Humphrey, PhD; E. Steve Roach, MD
How the Brain Processes and Suggested Interventions for Children with TSC Ayla Humphrey, PhD
Advocacy in the Education System Mary Brown; Dena Hook; Santo Pino, EDD
Communication Disorders in Children with TSCCandida Brown, MD; Renee Wachtel, MD
Track C Sessions
Genetic and Reproductive Issues David Kwiatkowski, MD, PhD; Janine Lewis, CGC; Hope Northrup, MDAdvocating for Yourself at Work and Life Vicky Whittemore, PhD; Lora BrugnaroSeizure Management and Issues in Adults with TSC Stephen Ashwal, MD; Deanna Dickens, MD; Lori Uber-Zak, MDWomen's Issues for Adults with TSC Deanna Dickens, MD; Geraldine Finlay, MD; Elizabeth Petri Henske, MDMen's Issues for Adults with TSC Peter Crino, MD, PhDGuardianship and Less Intrusive Alternatives Frank Capone; Theresa Varnet, Esq
Genetic and Reproductive Issues David Kwiatkowski, MD, PhD; Janine Lewis, CGC; Hope Northrup, MD
Advocating for Yourself at Work and Life Vicky Whittemore, PhD; Lora Brugnaro
Seizure Management and Issues in Adults with TSC Stephen Ashwal, MD; Deanna Dickens, MD; Lori Uber-Zak, MD
Women's Issues for Adults with TSC Deanna Dickens, MD; Geraldine Finlay, MD; Elizabeth Petri Henske, MD
Men's Issues for Adults with TSC Peter Crino, MD, PhD
Guardianship and Less Intrusive Alternatives Frank Capone; Theresa Varnet, Esq
Track D Sessions
Infancy and Preschool Community Services Pat Gibson, MSW; Kathryn Groves, MSOverview of TSC Presented in Spanish Mauricio Delgado, MDTS Alliance Research Program Update Vicky Whittemore, PhD; Peter Crino, MD, PhD; Bonnie E. Gould Rothberg, MD, MPH; Elizabeth Petri Henske, MDFinancial Protection for the Disabled Frank Capone; Theresa Varnet, EsqCoping Techniques for You, Your Spouse and Family and How to Use Humor through the Bad Times Vicky Whittemore, PhD; Yvonne Kay, PhD, CT; Pat Gibson, MSWComplimentary Therapies Michael Frost, MD; Pat Gibson, MSWAggressive Behavior Management Robert and Kathryn Groves, MS; David W. Dunn, MD
Infancy and Preschool Community Services Pat Gibson, MSW; Kathryn Groves, MS
Overview of TSC Presented in Spanish Mauricio Delgado, MD
TS Alliance Research Program Update Vicky Whittemore, PhD; Peter Crino, MD, PhD; Bonnie E. Gould Rothberg, MD, MPH; Elizabeth Petri Henske, MD
Financial Protection for the Disabled Frank Capone; Theresa Varnet, Esq
Coping Techniques for You, Your Spouse and Family and How to Use Humor through the Bad Times Vicky Whittemore, PhD; Yvonne Kay, PhD, CT; Pat Gibson, MSW
Complimentary Therapies Michael Frost, MD; Pat Gibson, MSW
Aggressive Behavior Management Robert and Kathryn Groves, MS; David W. Dunn, MD
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