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HELPFUL LINKS 

TSC-Related Organization Websites

World-Wide TSC Associations with Contact Information

General TSC-Related Information

Living with TSC - Multimedia resource from Massachusetts General Hospital
GeneClinics – Tuberous Sclerosis
National Institute of Neurological Disorders and Stroke: Tuberous Sclerosis
TOUS: CAS TUBEROUS SCLEROSIS (French site)
The Rothberg Institute for Childhood Diseases
mTOR Signaling Pathway & mTOR Inhibition Resource

Genetics

American Society of Human Genetics
DNA From the Beginning
Genetic Alliance
Genetics Home Reference: Your Guide to Understanding Genetic Conditions

Brain

Brain Tumor Resource Guide
Child Neurology Society
Hemispherectomy Foundation
National Institute of Neurological Disorders and Stroke
Neurosurgery at Massachusetts General Hospital/Harvard
Society for Neuroscience
Washington School of Medicine – Department of Neurology

Epilepsy

American Epilepsy Society
Cyberonics (medical devices for epilepsy)
Edmonton Epilepsy Association
Epilepsy Foundation of America
Epilepsy Information Service at Wake Forest University Baptist Medical Center 
Epilepsy Life Links (support services through the Northeast Regional Epilepsy Group, Hackensack, NJ)  
Epilepsy Ontario
Epilepsy Therapy Development Project 
EYC: The Spot for Young People with Epilepsy
General Information on Epilepsy (Epilepsy.com)
International Bureau for Epilepsy
Journal of the International League Against Epilepsy
Lundbeck's Support, Help and Resources for Epilepsy (SHARE)
Seizures – by Robert J. Doman, M.D.
Seizure Tracker - online tool to log and track seizure activity, appointments, and medication schedules
NYU Comprehensive Epilepsy Center
The EpiCentre
Washington University (St. Louis) Comprehensive Epilepsy Program

Autism

Autism Speaks
Autism – PDD Resources Network
Autism Research Institute
Autism Society of America
Center for the Study of Autism 
CDC - Autism Spectrum Disorders
National Institutes of Mental Health: Autism
The Autism Research Foundation
The Tomatis Method: Autism

Psychiatry and Behavior

Cambridge Center for Behavioral Studies
Children & Adults with Attention-Deficit / Hyperactivity Disorder (CHADD)
National Attention Deficit Disorder Association
National Sleep Foundation
Special Child (Resource Foundation for Children with Challenges)

Kidneys

Kidney Cancer Association
National Institute of Diabetes & Digestive & Kidney Diseases
National Kidney Foundation
PKD Foundation

Heart

American College of Cardiology
American Heart Association

Lungs

American Lung Association
LAM Treatment Alliance
LAM Foundation
LAM Action (UK)
Mesothelioma Information 

Skin / Dermatology

American Academy of Dermatology
Plastic Surgery Information Services
Dermatology Image Atlas – Johns Hopkins University

General health Research

National Institutes of Health Clinical Center

General Health Sites

American Academy of Family Physicians
American Academy of Pediatrics
Familydoctor.org (health information for the whole family)
Food and Drug Administration
Healthlinks.net
MEDLINE/PubMed (search engine)
Medline Plus: Drugs, Supplements and Herbal Information
National Institutes of Health
The National Alliance for Hispanic Health
University of Texas – Houston Medical Education Information Center
U.S. National Library Of Medicine

Support

State and National Resources

Brookes Publishing (Family guide books/videos)
Family Village – Disability-Related Resources
Families USA – The Voice for Health Care Consumers
Federal Resource Center for Special Education
Mandy's Farm for Autistic Women 
National Easter Seals Society
National Family Caregivers Association
National Sleep Foundation
Medic Alert Foundation United States
PatientTravel.org (Charitable medical air transportation resources) 
Peace, Love and Lemonade   
Rebecca Leah Berger Tuberous Sclerosis Foundation
School Psychology Resources Online
Side By Side Inc. (This Brookline, Massachusetts group provides supported residential, vocational/educational, social, and therapeutic services for adults with psychiatric or developmental disabilities to live as independently as possible in communities of their choice.)
Special Child (Resource Foundation for Children with Challenges)
Technical Assistance Alliance for Parent Centers
TheArcLink.org (Advice on home and community-based services)
The National Information Center for Children and Youth with Disabilities
TSCTalk
Woodbine House (Special Needs Resources)